Comments on: The Beast that is Arnold Chiari Malformation! http://sheliapowell.com/blog/the-beast-that-is-arnold-chiari-malformation/ Just another WordPress weblog Tue, 06 Jan 2009 03:02:14 +0000 http://wordpress.org/?v=2.7 hourly 1 By: Debra Murphy http://sheliapowell.com/blog/the-beast-that-is-arnold-chiari-malformation/comment-page-1/#comment-89 Debra Murphy Sun, 07 Sep 2008 19:37:02 +0000 http://sheliapowell.com/blog/?p=5#comment-89 Hi There: I also had decompression surgery for ACM, I was 20mm herniated. Please visit my website at: http://www.opening-minds-to-acm.com/ Thank you, Debra Hi There:

I also had decompression surgery for ACM, I was 20mm herniated.

Please visit my website at:

http://www.opening-minds-to-acm.com/

Thank you,

Debra

]]> By: Melissa http://sheliapowell.com/blog/the-beast-that-is-arnold-chiari-malformation/comment-page-1/#comment-61 Melissa Thu, 04 Sep 2008 21:39:14 +0000 http://sheliapowell.com/blog/?p=5#comment-61 Hi~My 9 year old daughter had an MRI 2 weeks ago to look at her pituitary gland because she is of small stature. I just heard back from her Endocrinologist and she told me that my daughter showed signs of a crowding around her brain stem and spinal cord which after lots of research, I came across your blog. Eerily, my daughter's name is Kelly as well. She is seeing the Pediatric Neurologist on Monday morning to go over the MRI. I was just wondering if you could give some information to a very scared and concerned parent. She has been through so much in the last 3 years of her life. She was diagnosed with ADHD when she was 6, this year she has been seeing the Endocrinologist for her small stature, now with a MRI this shows up with no symptoms. In my 5th month of pregnancy, I found out she may have neural tube defect which later on came back okay. I had a very difficult labor and delivery with Kelly. She was a large baby and she had shoulder dystocia. At this point, I just want to choke every doctor I see, you can probably imagine. I just need someone to talk to about this who has been through it. Any advice you can give would really ease my heart at this moment. Thanks a million for posting this blog! Hi~My 9 year old daughter had an MRI 2 weeks ago to look at her pituitary gland because she is of small stature. I just heard back from her Endocrinologist and she told me that my daughter showed signs of a crowding around her brain stem and spinal cord which after lots of research, I came across your blog. Eerily, my daughter’s name is Kelly as well. She is seeing the Pediatric Neurologist on Monday morning to go over the MRI. I was just wondering if you could give some information to a very scared and concerned parent. She has been through so much in the last 3 years of her life. She was diagnosed with ADHD when she was 6, this year she has been seeing the Endocrinologist for her small stature, now with a MRI this shows up with no symptoms. In my 5th month of pregnancy, I found out she may have neural tube defect which later on came back okay. I had a very difficult labor and delivery with Kelly. She was a large baby and she had shoulder dystocia. At this point, I just want to choke every doctor I see, you can probably imagine. I just need someone to talk to about this who has been through it. Any advice you can give would really ease my heart at this moment. Thanks a million for posting this blog!

]]> By: David Miller http://sheliapowell.com/blog/the-beast-that-is-arnold-chiari-malformation/comment-page-1/#comment-6 David Miller Thu, 07 Aug 2008 23:09:00 +0000 http://sheliapowell.com/blog/?p=5#comment-6 My son, Brian, had the decompression surgery in 2000 (eighth grade). I had never heard of ACM before that. He developed what was labelled initially as the worst migraine possible, and for over 2 months was in constant torment. Finally we got a referral to a pediatric neurosurgeon that had co-written the book on the surgery. (I have forgotten her name.)She ordered a "flow" MRI which, when she showed it to me, looked as though someone had drawn one line with a Magic Marker and the other with a very sharp pencil. She did the surgery a few days later, and now he lives a mostly normal life. He has ADD, mild tremors, and has to live with the knowledge that he can never play active sports(he would love to train in martial arts) or go into the military due to the fact that the bone that was removed from the back of his skull left him with the vulnerability that if he got hit hard in the back of the head it would probably kill him. (They did put in the graft you mentioned.) Even so, he is a sophomore in college, trying for a career as a theatre technician. Wishing you and your daughter all the best- David Miller My son, Brian, had the decompression surgery in 2000 (eighth grade). I had never heard of ACM before that. He developed what was labelled initially as the worst migraine possible, and for over 2 months was in constant torment. Finally we got a referral to a pediatric neurosurgeon that had co-written the book on the surgery. (I have forgotten her name.)She ordered a “flow” MRI which, when she showed it to me, looked as though someone had drawn one line with a Magic Marker and the other with a very sharp pencil. She did the surgery a few days later, and now he lives a mostly normal life. He has ADD, mild tremors, and has to live with the knowledge that he can never play active sports(he would love to train in martial arts) or go into the military due to the fact that the bone that was removed from the back of his skull left him with the vulnerability that if he got hit hard in the back of the head it would probably kill him. (They did put in the graft you mentioned.) Even so, he is a sophomore in college, trying for a career as a theatre technician.

Wishing you and your daughter all the best-
David Miller

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